Invotra will be turning Blue on Friday May 15th in support of my young nephew Max. As some of you are aware, my nephew Max was diagnosed with the incurable, degenerative disease MPS when he was just a year old. MPS causes progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. It is a very serious and ultimately fatal disease with most MPS sufferers not reaching their teenage years. Each week Max has a 5 hour infusion of a synthetic enzyme which helps to manage the disease, but unfortunately, this is not a cure. He is doing well right now, however, a cure is desperately needed. Research is on-going but because MPS is very rare there is little or no research focused on a cure.
On Friday 15th May myself and my work colleagues are going to wear blue – trousers/dress/tie/shirt/scarf etc – in support of Max and those with MPS. And we are going to post selfies/photos of ourselves to all our social media sites and also on chatter. We would be so grateful if others would follow suit. Pass it on! The aim is to create a sea of blue and spread as much awareness as possible.
Awareness breeds Interest, Interest breeds Research and Research will breed a Cure.
Should you wish to know more please visit www.mpssociety.co.uk. #MPSAwarenessDay #rarediseaseday @MPSSocietyUK @MPSSociety